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Wednesday, June 12, 2024

A Journey of heartbreak and awareness:

A Journey of heartbreak and awareness: Sana’s Battle with the EBV Virus It was a cold February morning in New Jersey when Sana first complained of feeling under the weather. Concerned, she visited a Minute Clinic, where she was prescribed antibiotics. However, her condition didn't improve. A few days later, a telehealth doctor suggested she might have mononucleosis (mono). My son had previously battled mono, and he recognized all the symptoms Sana was experiencing.What transpired over the next few months was nothing short of a nightmare. Sana was admitted to the hospital due to dehydration, and a blood test confirmed mono. Alarmingly, her liver and spleen levels were off due to the virus. After a few days, she returned home, only to be readmitted shortly after. The devastating news: her liver was failing. Miraculously, a liver donor was found, and her transplant was successful. Was that the end of our ordeal?

Unfortunately, it wasn't. Sana developed complications from PTLD (Post-Transplant Lymphoproliferative Disorder), a condition that can occur after a transplant. Despite being "100% treatable" in most cases, Sana's PTLD was exceptionally aggressive, spreading rapidly throughout her body. She slipped into a coma and left us forever.Who would have thought a simple virus could lead to such a tragic end? Sana's case was one in a million. Doctors admitted they had never seen anything like it. The Epstein-Barr Virus (EBV) is present in 98% of the population and typically causes mono. However, in 0.1% of cases, it can lead to liver failure. Similarly, while PTLD is usually curable, in 0.1% of cases, it can spread with devastating speed.e did everything we could, and so did the doctors. This post is to create awareness about the EBV virus. My 28-year-old daughter lost her life to it, falling into the unfortunate 0.1% who don't survive. Life is incredibly precious, and some things are beyond our control.Let's raise awareness and support research to prevent such tragedies from happening to others. Sana’s story is a stark reminder of how fragile life can be and the importance of health vigilance.#EBVAwareness #Mononucleosis #PTLD #HealthAwareness #LiverTransplant #MedicalAwareness #InMemoryOfSana

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